ME Consultancy

Provider: ME North East

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Description With funding from Children in Need we have developed a specialist service for young people over the last 8 years and have visited many schools speaking to staff and pupils on the effects of ME and how best to support each person. We will provide a brief outline of ME and how you can support pupils to maintain the best level of education to meet the needs of the individual child.
Duration
Website

ME North East's website

http://www.menortheast.org/Young%20Persons%20site/home%20page%20frames/yphome.html
Categories Primary, Secondary, Early Years/Foundation, KS1, KS2, KS3, KS4, Management, Support Staff, Teaching staff, Assistant Headteacher, CPD Leader, Deputy Headteacher, Headteacher, Head of year / Pastoral leader, Business Manager, Special Educational Needs Coordinator, Administration Staff, Catering Staff, Learning Support, Pupil Support, Site staff, Technicians, Other support staff, Advanced Skills Teacher, Excellent Teacher, Main-scale (core) teacher, Newly Qualified Teacher, Non-practising teacher, Post-threshold Teacher, Pupil mentor, Supply / Peripatetic teacher, Trainnee (pre-QTS) teacher, Teacher trainer, Head of Department / Faculty, Inclusion, Personalised Learning, In school, After-school meetings, Speech / Seminar
Learning outcomes for participants/users and, where relevant, pupils or students
Evidence underpinning this approach The provider has not supplied this information
How users/participants can evaluate success The provider has not supplied this information
Follow-up activities and support The provider has not supplied this information
Details

A regional charity supporting people with ME/CFS through advocacy, information and support, we enable people to access the services they require, not least in supporting young people to remain in education to the best of their ability. Prevalence rates identify 12,000 people in this region have ME/CFS, 2,000 are young people up to age 18. We have 430 young people up to age 25 on our database. We support all ages in education from primary school to university level. We provide training to all service providers, the voluntary sector and the general public on the particular needs of this patient group. We are the patient organisation representative on the Northern CFS/ME Clinical Network and work closely with Consultants, therapists and education providers working with those with ME/CFS. We have a formal medical advisory panel chaired by Dr Gavin Spickett, Clinical Champion for ME/CFS in this region. A growing number of Paediatricians are now diagnosing this illness, and all refer to us for additional help and support for the young person and the family. Children's therapy services to help young people manage ME are scarce (County Durham presently being the only dedicated provider). With funding from Children in Need we have developed a specialist service for young people over the last 8 years and have visited many schools speaking to staff and pupils on the effects of ME and how best to support each person. We will provide a brief outline of ME and how you can support pupils to maintain the best level of education to meet the needs of the individual child. We receive minimum statutory funding for our work, funds are raised through other charitable organisation, key supporters are The Big Lottery and Children in Need. We fundraise locally, arrange and participate in sponsored events, and receive voluntary subscriptions.